Information for people living with conditions that affect their appearance – Summary and recommendation

In September 2003, Picker began a three year research programme to investigate the information needs of patients with conditions that affect appearance, that is, they cause disfigurement and/or visible loss of function. The investigation was in three parts. The three parts of the research are reported separately. This paper provides an overview of the research programme, drawing out common themes, summarising key findings and presenting recommendations.