Your participation will help Lymphoma Coalition gain a better understanding of the patient and caregiver experience.
The survey is for adults aged 18 years and over who have been diagnosed with lymphoma or CLL (a subtype of lymphoma), or for people who care for somebody who has lymphoma or CLL, referred to in the survey as ‘caregivers’. The survey will take about 30 to 45 minutes to complete depending on the number of treatments you have received. What you tell us is confidential and taking part is voluntary.
Lymphoma Coalition is committed to bringing equity in lymphoma outcomes across borders. To do this, we must accurately represent the current voices and values of patients and their caregivers. This is especially important when we work with healthcare professionals, researchers, industry and others to improve care. This knowledge is gathered through the Global Patient Survey (GPS). In addition, the results of past surveys have been used to inform published research papers, conference presentations and posters, patient resources, education materials and lymphoma awareness campaigns. The results of the GPS are shared in a Global Report, as well as regional and country reports. It is through partnership with our member organisations that we can successfully gather the experiences and insights of patients and caregivers around the world.
Lorna Warwick, CEO at Lymphoma Coalition, said:
“Lymphoma Coalition is committed to a better future for everyone impacted by lymphoma. To achieve this, it is imperative to listen to patients and their caregivers to inform how we advocate on their behalf with healthcare professionals, researchers, government bodies, and industry stakeholders. The Global Patient Survey serves as a vital tool in this mission. In partnering with Picker for the 2024 iteration, we continue to ensure that the voices of those affected by lymphoma are central to the work that is done to better shape the future of lymphoma care.”
Picker complies with Data Protection Laws including the General Data Protection Regulation and Data Protection Act 2018, and the Market Research Society’s (MRS) Code of Conduct. Any sensitive or confidential material is stored securely in line with our data protection policy.
For more information, you can access the Lymphoma Coalition Privacy Policy, and the Picker Privacy notice.
If you start the survey and decide you would like to finish at a later time, you should be able to leave the webpage and revisit to the point of completion if you have cookies turned on in your browser settings. To pick up where you left off, you will have to access the survey via the same device and browser.
If you have any questions or would rather speak to us, please contact marketing@lymphomacoalition.org or the project team at Picker on take_part@pickereurope.ac.uk with ‘Lymphoma Coalition GPS’ in the subject line.